Wednesday Apr 13, 2022

F**king Epilepsy | S1 | E10

Sarah, Rachel and Lucy open up and talk all things epilepsy in today’s podcast. There are no fluffy unicorns or rose-tinted glasses here. We’re real, raw and talking about epilepsy from a parent perspective.  

Witnessing it, treating it and living on the brink of when it might strike again. So essentially this episode should just be one big trigger warning. But if you might find it helpful to know you are not treading the epilepsy tightrope alone – listen in as we swear and rant about: 

  • Different types of seizure 
  • Diagnosis 
  • Monitoring epilepsy 
  • SUDEP (Sudden unexpected death in epilepsy) 
  • Medications and other treatments 
  • Making YouTube films of different seizure types 

 Trigger warning we talk all about Epilepsy and it is traumatic to witness. This conversation includes Sudden Unexpected Death in Epilepsy (SUDEP). 

 Useful and reputable information 

All about epilepsy from NHS 

Sami alert (as talked about by Lucy) 

SUDEP action 

Children epilepsy charity 

Different epilepsy monitoring options highlighted in epilepsy UK 

Comments (1)

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rowdenl

Thanks for sharing your lives and stories. I feel a little less alone on the journey.

Sunday Sep 08, 2024

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