The Skies We’re Under

It’s a Complex Night | S2 | E8

As well as being joined by Sarah Clayton, we have the pleasure of Jane Hamer’s company. Jane is a physiotherapist in New Zealand who has recently completed research with parents of children who have disabilities and who are introducing night-time positioning equipment.  
We talk about just how hard news can sometimes be and the important steps which can make 'hard' just a little easier. If you’re a parent of someone with limited movement or a practitioner – we think you’ll find this episode super helpful. 
You can read Jane’s research here https://ourarchive.otago.ac.nz/handle/10523/13716 
We're referring to this podcast episode as our first edition of The Skies We're Under practitioner series. Are there any professionals you would like us to talk to on the podcast? We'd love you to email tswupodcast@gmail.com to suggest who you would like to hear from. Similarly you can also email your stories, comments and questions to the same address or follow us on Instagram @BornatRightTime. 
It would also make our day if you could like, follow and review the podcast wherever you listen.   
Head to www.bornattherighttime.com to book onto one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  
 
#TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine #physiotherapy #posturalcare #positioningequipment 
 

I just want to eat chocolate, watch a movie and cry ... | S2 | E7

Are you and your partner on the same emotional wavelength when it comes to processing change or caring responsibilities?
 
Are one of you more practical and the other emotional? Does it wind you up at all?
 
Can caring and logistics ever be shared out equally?
Kenny and Tutu Popoola are husband and wife founders of Black Special Needs Parents (BSNP). BSNP provides a haven for black parents of children living with disabilities to express themselves and get the support they need to thrive while raising their children. It also serves as a great source of information as well as a signposting service to resources.  
Having been brought up in Nigeria, Kenny and Tutu are now raising two children in the UK, one with complex disabilities. Kenny was slightly outnumbered during our chat but we covered how Dads are often underrepresented and women are more advanced – Kenny actually said it himself.  
We unpick a bit of the typical male and female response to things and discuss the sense of joy (and loss) when a child develops typically and reaches milestones which seem effortless.  
It’s a really comforting conversation which raises some important differences brought about by culture, privilege and faith, but also many similarities in our shared complex emotions. 
Check out their brilliant website https://www.bsnpsn.org/ for more information or follow @blackspecialneedsparentsuk. The church with SEN provision that Kenny and Tutu are part of is https://citygates.london/get-connected/special-needs/  
 
It would make our day if you could like, follow and review the podcast wherever you listen.   
  Email your stories, comments and questions to tswupodcast@gmail.com to join in or follow us on Instagram @BornatRightTime.   
  Head to www.bornattherighttime.com to book into one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  
 
#TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine  #blackspecialneeds #kennyandtutu #SEN #senpodcast #complexneeds #complexdisabilities #podcastswelistento

Heart-Stopping Moments |S2 | E6

Marian Selby-Boothroyd is the Director of Development at Certitude (an adult social care provider) and the parent of three boys who have a remarkable array of complexities and awesomeness - Autism, Down Syndrome, rare and life-threatening heart condition and worse of all, for one son – being just like his mum. 
In this brilliant conversation we touch on tough topics such as: 
Adjusting to being the parent of a child with Down syndrome and how it can be more about us adjusting to the system than the baby. 
Do not resuscitate orders. 
Your child needing CPR and learning how to live in the moment every day. 
How you can have all the right qualifications as a professional and still miss things as a parent. 
TRIGGER warning, this episode covers topics of cardiac arrest and CPR.
It would make our day if you could like, follow and review the podcast wherever you listen.   
 Email your stories, comments and questions to tswupodcast@gmail.com to join in or follow us on Instagram @BornatRightTime.   
Head to www.bornattherighttime.com to book onto one of The Skies We’re Under live events, find a parent workshop or CPD-certified training for practitioners in Communication, Collaboration & Personalised Care with Parents/Carers.  
 
#TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine  #complexneeds #complexdisabilities #podcastswelistento #downsyndrome #cpr #dnr #donotresuscitate #autism #heartcondition