The Skies We’re Under
Nurse, author and Director of Born at the Right Time, Rachel Wright talks to fellow parents of people with disabilities and others in their community. With the power of story telling, laughter, swearing and useful information they create solace in knowing the warts and all truth of this off piste version of parenting. Whether a well seasoned parent, newbie, one of many practitioners supporting families or simply someone wanting to peak over the fence - you’re welcome to listen in. We are better together, whatever Skies We’re Under.
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Episodes
Tuesday Feb 28, 2023
Tuesday Feb 28, 2023
In the second of our festive specials, Rachel, Sarah and Lucy talk about how Christmas for many, far from being magic and nostalgic, can simply become a case of ‘just got to get through it’. How for a lot of parents, we so want to feel one thing but the reality of the many emotions we live with become bigger and bigger as December progresses.
Adapting plans and expectations for Christmas – what can be ditched?
How to show love and support for a person with complex needs.
Feelings of isolation at Christmas.
Managing expectations.
The contrast of the ‘complex Christmas’.
Letting go of emotions.
Additional pressures of Christmas.
Christmas is a time where expectations are highlighted and magnified. Having a child with complex needs takes the ability to create your ‘perfect Christmas’ out of your hands.
(See our Instagram post for the snow making reel discussed in this episode.)
Please rate, review and follow the podcast. You can also DM our social channels, or email TSWUpodcast@gmail.com.
#TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #swearing #laughingisthebestmedicine
Wednesday Dec 21, 2022
Wednesday Dec 21, 2022
In this Christmas episode, we discuss the good, the bad and the ugly of Christmas. We talk the lead up, the lights, the planning, the nativities and the REALITY of Christmas Day, as well as
· Is Christmas a holiday / break?
· The experience of a SEN school Christmas / nativity - the carnage, the hilarity, the cuteness and the (in)appropriateness.
· The emotional overload of the festive season.
· Christmas presents – buying gifts for a child with complex needs and the overwhelming multitude of people who support them
· Top tips for gifting including recycling, regifting, wish lists and whether it’s acceptable to buy children everyday essentials.
At a time when expectations of joy and magic are so high, what we often overlook is that reality and lived experience don’t change. Rachel, Sarah and Lucy discuss the importance of keeping in mind who Christmas is for and therefore how best to manage expectations and keep them realistic.
Please rate, review and follow the podcast. You can also DM our social channels, or email TSWUpodcast@gmail.com.
#TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #swearing #laughingisthebestmedicine
Friday Sep 02, 2022
Friday Sep 02, 2022
Less support + Less equipment + Less routine + Higher expectations = Holidays
Or as we like to call it, having a different kitchen sink. As ever Rachel, Sarah and Lucy give the slightly sweary warts and all version of life, stresses and loves of parenting a disabled child.
Lucy swears more than normal, spoiler alert (none of us have managed a relaxing summer break yet) and we’re all a bit p****d about all the Instagram spam of leisurely summer family trips away.*
Please rate, review and follow the podcast. You can also DM @bornatrighttime, or email TSWUpodcast@gmail.com
*There is much to be grateful for and we love our children Blah Blah Blah...
Find more about Family Fund for financing holidays here
Find out about Camp Jojo here
#TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #swearing #laughingisthebestmedicine