The Skies We’re Under
Nurse, author and Director of Born at the Right Time, Rachel Wright talks to fellow parents of people with disabilities and others in their community. With the power of story telling, laughter, swearing and useful information they create solace in knowing the warts and all truth of this off piste version of parenting. Whether a well seasoned parent, newbie, one of many practitioners supporting families or simply someone wanting to peak over the fence - you’re welcome to listen in. We are better together, whatever Skies We’re Under.
Listen on:
Episodes
Wednesday Apr 27, 2022
Wednesday Apr 27, 2022
Lucy, Rachel and Sarah talk this week on the podcast about resilience.
Do we have it?
Do we want it?
Is there a difference between healthy and unhealthy resilience?
There are also confessions of the umbrella-stand-kind and a couple of handy, practical disability hacks.
You can find more information about PATH (Planning alternative tomorrows for hope) here and see the photos we talk about on our Instagram @BornatRightTime.
If you have a moment, we would really appreciate you taking the time to review, rate and follow the podcast. Then tell anyone who might listen all about it! For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you.
Wednesday Apr 20, 2022
Wednesday Apr 20, 2022
Sarah, Rachel and Lucy laugh, talk and rant a bit about parenting children with disabilities, in particular asking for and getting help. We confess to thinking none of us need it but actually acknowledging we all do. There is a confession of the pessary kind and if you do not laugh during this episode – you might need to be checked out by a doctor.
We cover:
Helpful help
Unhelpful help
The relationship between helping and being helped
And how asking for help isn’t weakness but true connection and the best part of human-ing
Research referenced from Disabled children’s partnership
Simple Stuff Works
Born at the Right Time
Wednesday Apr 13, 2022
Wednesday Apr 13, 2022
Sarah, Rachel and Lucy open up and talk all things epilepsy in today’s podcast. There are no fluffy unicorns or rose-tinted glasses here. We’re real, raw and talking about epilepsy from a parent perspective.
Witnessing it, treating it and living on the brink of when it might strike again. So essentially this episode should just be one big trigger warning. But if you might find it helpful to know you are not treading the epilepsy tightrope alone – listen in as we swear and rant about:
Different types of seizure
Diagnosis
Monitoring epilepsy
SUDEP (Sudden unexpected death in epilepsy)
Medications and other treatments
Making YouTube films of different seizure types
Trigger warning we talk all about Epilepsy and it is traumatic to witness. This conversation includes Sudden Unexpected Death in Epilepsy (SUDEP).
Useful and reputable information
All about epilepsy from NHS
Sami alert (as talked about by Lucy)
SUDEP action
Children epilepsy charity
Different epilepsy monitoring options highlighted in epilepsy UK