The Skies We’re Under

CONTENT WARNING – CONTAINS DISCUSSIONS RE: DIAGNOSIS/DIAGNOSES, CHILDHOOD CANCER AND TRAUMATIC BIRTHS.
Back to Season 4, Episode 31 where Rachel, Sarah and Lucy took a deep dive into who were the people who really made a difference in the early days
They’re  remembering diagnosis, and the people who made a difference, the people that genuinely changed their world when it got flipped upside down.
They reflect on the people who have help us hear the news we don’t want to, as they we to receive diagnoses, which never get easier to hear, no matter how ‘used to it’ we are.
Thanks to the lovely folk at Jiraffe for sponsoring this week’s episode. You can find more about them and their work here.
We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.
You can leave a message with us in a number of ways:
Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast
(Please note calls need to be limited to 90 seconds)
You can send us a voice note from your phone to our email address at tswupodcast@gmail.com
Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com
Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .
Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.
‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more. tswupodcast@gmail.com

Join Rachel, Lucy and Sarah for a step back in time to July 2024 when and Season 3, Episode 19 of The Skies We’re Under.
They are joined by the sensational Melanie Dimmet, Writer, Author and Broadcaster. Rachel and Mel remember the very early stages following diagnosis, sharing messages of hope, connection and support and letting our children lead the way.
You can find more about Mel’s work here:
https://www.melaniedimmitt.com.au/
Her Book, Special is available to buy from all good retailers;
The Blend Mag is the best looking magazine on the planet.
Please note that the Hibi app that was referenced is no longer available in the same format. 
There is the usual sweary talk from the hosts, as they share updates in their lives, and plenty of excellent examples of faultless parenting – with no mistakes made at all, whatsoever…
We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly.
You can leave a message with us in a number of ways:
Firstly you can leave a message using speakpipe here: https://www.speakpipe.com/TSWUpodcast
(Please note calls need to be limited to 90 seconds)
You can send us a voice note from your phone to our email address at tswupodcast@gmail.com
Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com
Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) .
Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.
Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more tswupodcast@gmail.com

In this recast of the second ever episode of ‘The Skies We’re Under’ Lucy, Sarah and Rachel talk about some of the helpful and unhelpful ways they deal with times of stress and transition. 
This is not professional advice but an honest conversation about the trust of complex realities and how  they try to live life well.
Content warning: Very early on in this episode we talk about the fear and potential for childhood death, DNACPR, childhood cancer and stroke.
They also do laugh a lot because this world we live in manages to have both sadness and laughter– despite the absurdity of it all. 
Please do not listen to this episode if this will not serve you well. They also discuss the importance of conversations about children’s end of life care. Details of resources are below.
The following resources are discussed during the podcast:
ReSPECT documents and end of life discussions.
Completing the stress cycle. You can listen to the brilliant podcast with Brene Brown, Emily Nagoski and Amelia Nagoski, How to complete the stress cycle. Or read Emily and Amelia’s book.
Affinity hub website: emotional support for parents of children with special needs.
Day-by-Day: emotional wellbeing in parents of disabled children. Jo Griffin
Since this episode the podcast has gone from strength to strength and almost 130 episodes later there's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more.
Email your questions and comments to tswupodcast@gmail.com and don’t forget to rate, review, share and subscribe - this increases our chance of being able to keep doing The Skies We're Under podcast.